Find the Cure.

About Us

This movement was formed by a group of individuals either immediately affected by Congenital Myotonic Dystrophy, or interested in volunteering their time to help find the cure. Meet the team here.


Since 2004, the Singeris family and friends have hosted black-tie gala nights to establish and fund the William Singeris National Center for Myotonic Dystrophy. We are always graciously accepted donations here.


Every donation makes a difference, and we are tremendously grateful for every cent we have recieved. Your financial donation will help fundraise to continue and advance research on Myotonic Dystrophy.

Thank you,

for helping to create a healthier world for children and their families.

An Enchanted Evening held on Saturday, May 13th in support of Myotonic Dystrophy Research was an outstanding success! Support like yours is the reason $75,524 (net) was raised. I wanted to extend a heart-felt thank you for your commitment in making this event such a tremendous success. In February 2005, the William Singeris National Centre for Myotonic Dystrophy was opened in London as part of Children’s Health Research Institute, a division of Lawson Research. Since its inception, the Singeris Family has raised over $325,000 to fund this ground-breaking initiative.